000			05461cam a2200517 i 4500
001			ocn962454795
003			OCoLC
005			20240726104745.0
008			161203s2016 dcua obt 100 0 eng
040			_aNLM _beng _erda _epn _cNLM _dCUS _dMMU _dEBLCP _dMERUC _dNT _dIDB _dYDX _dOCLCO _dNLM _dOCLCO _dOCLCA _dESU _dOCLCQ _dOCLCO _dUAB _dOCLCA _dBUF _dOCLCF _dOCLCQ _dEZ9 _dVT2 _dOCLCQ _dOCLCO _dOCLCA _dOCLCQ _dOCLCO _dUKAHL _dOCLCO _dOCLCA _dOCLCQ _dOCLCO _dK6U _dOCLCO _dOCLCQ _dOCLCA
016	7		_a101697035 _2DNLM
020			_a9780309447324
020			_a9780309447331
042			_apcc
043			_an-us---
050	0	4	_aRA773 _b.R454 2016
049			_aMAIN
100	1		_aAlper, Joe, _e1
245	1	0	_aRelevance of health literacy to precision medicine : _bproceedings of a workshop / _cJoe Alper, rapporteur ; Roundtable on Health Literacy, Board on Population Health and Public Health Practice, Health and Medicine Division, the National Academies of Sciences, Engineering, Medicine.
260			_aWashington, DC : _bThe National Academies Press, _c(c)2016.
300			_a1 online resource (1 PDF file (xix, 104 pages)) : _billustrations
336			_atext _btxt _2rdacontent
337			_acomputer _bc _2rdamedia
338			_aonline resource _bcr _2rdacarrier
347			_adata file _2rda
504			_a1
520	3		_aOn January 20, 2015, President Obama announced the Precision Medicine Initiative (PMI) in his State of the Union address. The PMI, by developing new approaches for detecting, measuring, and analyzing a wide range of biomedical information including molecular, genomic, cellular, clinical, behavioral, physiological, and environmental parameters, is intended to enable a new era of medicine in which researchers, providers, and patients work together to develop individualized care. Part of this effort included the creation of a national, large-scale research participant group, or cohort. The PMI Cohort Program is aimed at extending precision medicine to many diseases, including both rare and common diseases such as diabetes, heart disease, Alzheimer's disease, obesity, and mental illnesses such as depression, bipolar disorder, and schizophrenia, by building a national research cohort of 1 million or more U.S. participants. An important challenge to assembling the PMI Cohort will be to reach individuals who are socioeconomically disadvantaged. Individuals who are socioeconomically disadvantaged have lower health literacy; often belong to racial, ethnic, and minority communities; and are often less likely to participate in research studies and biorepositories. To explore possible strategies and messaging designs, the Roundtable on Health Literacy formed an ad hoc committee charged with planning and conducting a 1-day public workshop on the intersection of health literacy and precision medicine. The workshop participants discussed a variety of topics including an overview of precision medicine and its potential, the relevance of health literacy to the success of precision medicine efforts, and perspectives and understanding of different groups, such as health care providers, consumers, and insurers. This publication summarizes the presentations and discussions from the workshop.
530			_a2 _ub
536			_aThis activity was supported by contracts between the National Academy of Sciences and AbbVie Incorporated; the Aetna Foundation; the Agency for Healthcare Research and Quality (HHSP23337024); American Dental Association; Bristol-Myers Squibb; East Bay Community Foundation (Kaiser Permanente); Eli Lilly and Company; Health Literacy Missouri; Health Literacy Partners; Health Resources and Services Administration (HHSH25034011T); Humana; Institute for Healthcare Advancement; Merck and Company, Incorporated; National Institutes of Health (HHSN26300054); National Library of Medicine; Northwell Health; Office of Disease Prevention and Health Promotion (HHSP23337043); and UnitedHealth Group. Any opinions, findings, conclusions, or recommendations expressed in this publication do not necessarily reflect the views of any organization or agency that provided support for the project.
505	0	0	_aIntroduction -- _tGenetic literacy -- _tThe intersection of health literacy and precision medicine -- _tHealth liteacy in precision medicine research -- _tCommunicating risk and uncertainty in the clinical setting -- _tCommunicating with the public -- _tReflections on the day -- _tReferences -- _tAppendix A: Workshop agenda -- _tAppendix B: Biographical sketches of workshop speakers, moderators, and reactors.
600	1	0	_aPrecision Medicine Initiative.
650		0	_aHealth literacy _zUnited States _vCongresses.
650		0	_aPrecision medicine _zUnited States _vCongresses.
650		0	_aHealth literacy.
650		0	_aPrecision medicine.
650	1	2	_aHealth Literacy
650	1	2	_aPrecision Medicine
650	2	2	_aHealth Communication
655		1	_aElectronic Books.
700	1		_aNational Academies of Sciences, Engineering, and Medicine (U.S.). _eissuing body.
711	2		_aRelevance of Health Literacy to Precision Medicine (Workshop) _cWashington, D.C.)
856	4	0	_zClick to access digital title | log in using your CIU ID number and my.ciu.edu password. _uhttpss://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&db=nlabk&AN=1426569&site=eds-live&custid=s3260518
942			_cOB _D _eEB _hRA. _m2016 _QOL _R _x _8NFIC _2LOC
994			_a92 _bNT
999			_c77265 _d77265
902			_a1 _bCynthia Snell _c1 _dCynthia Snell