TY  - BOOK
AU  - Pemberton,Stephen Gregory
TI  - The Bleeding Disease: Hemophilia and the Unintended Consequences of Medical Progress 
SN  - 9781421404424
AV  - RC642 .B544 2011
PY  - 2011///
CY  - Baltimore
PB  - Johns Hopkins University Press
KW  - Hemophilia
KW  - United States
KW  - History
KW  - Blood
KW  - Transfusion
KW  - Hemophilia A
KW  - history
KW  - therapy
KW  - Liver Transplantation
KW  - trends
KW  - History, 20th Century
KW  - HIV Infections
KW  - transmission
KW  - Blood Transfusion
KW  - Multi-User
KW  - Electronic Books
N1  - 2; Introduction : hemophilia as pathology of progress --; The emergence of the hemophilia concept --; The scientist, the bleeder, and the laboratory --; Vital factors in the making of a masculine world --; Normality within limits --; The hemophiliac's passport to freedom --; Autonomy and other imperatives of the health consumer --; The mismanagement of hemophilia and AIDS --; Conclusion : the governance of clinical progress in a global age; 2; b
N2  - By the 1970s, a therapeutic revolution, decades in the making, had transformed hemophilia from an obscure hereditary malady into a manageable bleeding disorder. The glory of this achievement was short lived as the same treatments that delivered some normalcy to the lives of persons with hemophilia brought unexpected fatal results in the 1980s when people with the disease contracted HIV-AIDS and Hepatitis C in staggering numbers. Pemberton recounts the promising and perilous history of American medical and social efforts to manage hemophilia in the twentieth century. --From publisher description
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ER  -