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Everything you need to know about caregiving for Parkinson's disease /Lianna Marie.

By: Material type: TextTextPublication details: West Lafayette, Indiana : Purdue University Press, (c)2020.Description: 1 online resourceContent type:
  • text
Media type:
  • computer
Carrier type:
  • online resource
ISBN:
  • 9781557539977
  • 9781557539960
Subject(s): Genre/Form: LOC classification:
  • RC382 .E947 2020
Online resources: Available additional physical forms:
Contents:
Everything You Need to Know About CAREGIVING for Parkinson's Disease -- Title -- Dedication -- Copyright -- Contents -- About the Author -- Preface -- Words You Need to Know -- PART 1 CAREGIVING ESSENTIALS -- 1. Who Cares? -- 2. Before You Say Yes to Caregiving -- 3. Get Help -- 4. Set Boundaries -- 5. Take Care of Yourself -- PART 2 WHAT TO EXPECT -- 6. How Long Will My Caregiving Role Last? -- 7. The Physical Side of Caregiving -- 8. The Costs of Caregiving -- 9. Planning for Parkinson's -- PART 3 THE EMOTIONAL SIDE OF CAREGIVING -- 10. What to Do When You Feel Overwhelmed
12. Keeping Your Cool: How to Stay Patient During Those Trying Times -- 13. How to Deal With Guilt -- 14. How to Cope With Loneliness -- 15. How to Handle Depression -- 16. How to Cope With Worries About the Unknown -- 17. How to Deal With Resentment -- PART 4 GETTING PRACTICAL: GENERAL CAREGIVING ISSUES -- 18. How to Help When Help Isn't Wanted -- 19. What NOT to Do When Caregiving -- 20. Long-Distance Caregiving -- 21. What to Do When No One Will Help -- PART 5 GETTING PRACTICAL: CAREGIVING FOR PARKINSON'S
23. Caregiving in the Mid-Stages of PD -- 24. Caregiving in the Late Stages of PD -- 25. How to Parkinson's-Proof Your Home -- 26. Helping With Mobility -- 27. Managing Freezing Episodes -- 28. Preventing Falls -- 29. Getting the Most Out of Medications -- 30. How to Deal With Hallucinations and Delusions -- 31. How to Handle Weight Loss -- 32. Help for Drooling and Dry Mouth -- 33. Mealtime and Swallowing Tips -- 34. Social and Activity Concerns -- PART 6 ESPECIALLY FOR SPOUSES -- 35. Special Needs of Spousal Caregivers
37. When Parkinson's Is Keeping You Up All Night -- 38. How Can I Regain Respect for My Spouse With PD? -- 39. Parkinson's and Your Sex Life -- PART 7 GETTING HELP -- 40. Respite Care -- 41. Housing Options -- 42. When Is It Time to Apply for Disability? -- 43. How Can We Pay for Caregiving? -- 44. How Do I Find Time for Me? -- PART 8 TOUGH CAREGIVING DECISIONS AND ISSUES -- 45. Decisions About Driving -- 46. How to Get Your Loved One to Consider Home Care -- 47. The Dreaded Nursing Home Decision -- 48. Keeping Peace in the Family
50. Grieving While Your Loved One Is Still Alive -- Acknowledgments -- Appendix -- Notes
Subject: "Caregiving for those who suffer from Parkinson's disease comes with many challenges, from how to deal with guilt and loneliness to avoiding burnout and figuring out what to expect from an unpredictable disease. When giving care, too often caregivers neglect their own well-being. Everything You Need to Know About Caregiving for Parkinson's Disease is not just about caring for your loved one, but also about taking care of yourself. Lianna Marie served as her mother's caregiver for more than twenty years after she was diagnosed with Parkinson's disease. Drawing on firsthand experience, her training as a nurse, and the many stories of others she has helped and counseled over the years, Marie shares her wisdom and advice-practical and emotional. Written accessibly and without jargon, Everything You Need to Know provides an essential resource full of useful information for all caregivers of those with Parkinson's disease"--
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Includes bibliographical references.

"Caregiving for those who suffer from Parkinson's disease comes with many challenges, from how to deal with guilt and loneliness to avoiding burnout and figuring out what to expect from an unpredictable disease. When giving care, too often caregivers neglect their own well-being. Everything You Need to Know About Caregiving for Parkinson's Disease is not just about caring for your loved one, but also about taking care of yourself. Lianna Marie served as her mother's caregiver for more than twenty years after she was diagnosed with Parkinson's disease. Drawing on firsthand experience, her training as a nurse, and the many stories of others she has helped and counseled over the years, Marie shares her wisdom and advice-practical and emotional. Written accessibly and without jargon, Everything You Need to Know provides an essential resource full of useful information for all caregivers of those with Parkinson's disease"--

Cover -- Everything You Need to Know About CAREGIVING for Parkinson's Disease -- Title -- Dedication -- Copyright -- Contents -- About the Author -- Preface -- Words You Need to Know -- PART 1 CAREGIVING ESSENTIALS -- 1. Who Cares? -- 2. Before You Say Yes to Caregiving -- 3. Get Help -- 4. Set Boundaries -- 5. Take Care of Yourself -- PART 2 WHAT TO EXPECT -- 6. How Long Will My Caregiving Role Last? -- 7. The Physical Side of Caregiving -- 8. The Costs of Caregiving -- 9. Planning for Parkinson's -- PART 3 THE EMOTIONAL SIDE OF CAREGIVING -- 10. What to Do When You Feel Overwhelmed

11. How to Manage Caregiver Stress and Prevent Burnout -- 12. Keeping Your Cool: How to Stay Patient During Those Trying Times -- 13. How to Deal With Guilt -- 14. How to Cope With Loneliness -- 15. How to Handle Depression -- 16. How to Cope With Worries About the Unknown -- 17. How to Deal With Resentment -- PART 4 GETTING PRACTICAL: GENERAL CAREGIVING ISSUES -- 18. How to Help When Help Isn't Wanted -- 19. What NOT to Do When Caregiving -- 20. Long-Distance Caregiving -- 21. What to Do When No One Will Help -- PART 5 GETTING PRACTICAL: CAREGIVING FOR PARKINSON'S

22. Caregiving in the Early Stages of PD -- 23. Caregiving in the Mid-Stages of PD -- 24. Caregiving in the Late Stages of PD -- 25. How to Parkinson's-Proof Your Home -- 26. Helping With Mobility -- 27. Managing Freezing Episodes -- 28. Preventing Falls -- 29. Getting the Most Out of Medications -- 30. How to Deal With Hallucinations and Delusions -- 31. How to Handle Weight Loss -- 32. Help for Drooling and Dry Mouth -- 33. Mealtime and Swallowing Tips -- 34. Social and Activity Concerns -- PART 6 ESPECIALLY FOR SPOUSES -- 35. Special Needs of Spousal Caregivers

36. What to Do When Your Life Becomes All About Parkinson's -- 37. When Parkinson's Is Keeping You Up All Night -- 38. How Can I Regain Respect for My Spouse With PD? -- 39. Parkinson's and Your Sex Life -- PART 7 GETTING HELP -- 40. Respite Care -- 41. Housing Options -- 42. When Is It Time to Apply for Disability? -- 43. How Can We Pay for Caregiving? -- 44. How Do I Find Time for Me? -- PART 8 TOUGH CAREGIVING DECISIONS AND ISSUES -- 45. Decisions About Driving -- 46. How to Get Your Loved One to Consider Home Care -- 47. The Dreaded Nursing Home Decision -- 48. Keeping Peace in the Family

49. Parkinson's and Dementia: Caregiving for a Double Diagnosis -- 50. Grieving While Your Loved One Is Still Alive -- Acknowledgments -- Appendix -- Notes

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