The cure : how a father raised 100 million and bucked the medical establishment in a quest to save his children / Geeta Anand. [print]

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Veritas -- Trouble -- Diagnosis -- Hope -- God doesn't give you more than you can handle -- The road to power and influence -- Megan -- The conference -- The marriage -- Sharon -- Betting on research -- "Let's just do it" -- A rocky start -- Failure is not an option -- Cowboys -- Losing support -- Novazyme time -- Making memories -- The bluff -- The deal -- Genzyme -- Tough choices -- The mother of all experiments -- The sibling study -- Plan B -- "You can tell Megan" -- Ready to run.

The riveting true story of John and Aileen Crowley's race to find a cure for Pompe disease that inspired the movie Extraordinary Measures With three beautiful children, a new house, and financial security, John and Aileen Crowley were on top of the world-until their two youngest children, fifteen-month-old Megan and five-month-old Patrick, were diagnosed with Pompe disease and given only months to live. Refusing to accept a death sentence, John quit his financial consultant job and invested his life savings in a biotechnology start-up to research the disease and find a cure. Battling scientific setbacks, conflict of interest accusations, and business troubles, John and Aileen would be tested to their limits as they valiantly fought, and succeeded, in finding revolutionary new treatment for the disease-offering hope to Megan, Patrick, and the many children and families affected by Pompe disease around the world. The inspiration for the captivating film Extraordinary Measures, starring Brendan Fraser and Harrison Ford, The Cure is a remarkable true story of cutting-edge science, business acumen and daring, and one family's indomitable spirit.

https://www.amazon.com/Cure-Million-Medical-Establishment-Children/dp/006073440X/ref=sr_1_1?keywords=9780060734398&qid=1574288092&sr=8-1