MARC details
| 000 -LEADER |
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| fixed length control field |
03648cam a2200445Mi 4500 |
| 001 - CONTROL NUMBER |
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| control field |
on1129193631 |
| 003 - CONTROL NUMBER IDENTIFIER |
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| control field |
OCoLC |
| 005 - DATE AND TIME OF LATEST TRANSACTION |
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| control field |
20240726104808.0 |
| 008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION |
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| fixed length control field |
191214s2020 nyu o 000 0 eng d |
| 040 ## - CATALOGING SOURCE |
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| Original cataloging agency |
EBLCP |
| Language of cataloging |
eng |
| Description conventions |
pn |
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rda |
| Transcribing agency |
EBLCP |
| Modifying agency |
NT |
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OCLCF |
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UBY |
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OCLCQ |
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UKOUP |
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DEGRU |
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OCLCO |
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STF |
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OCLCO |
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YDX |
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IAC |
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OCLCO |
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OCLCA |
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JSTOR |
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OCLCO |
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HCK |
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OCLCA |
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P@U |
| -- |
OCLCO |
| 020 ## - INTERNATIONAL STANDARD BOOK NUMBER |
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| International Standard Book Number |
9781479834327 |
| Qualifying information |
|
| 043 ## - GEOGRAPHIC AREA CODE |
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| Geographic area code |
n-us--- |
| 050 00 - LIBRARY OF CONGRESS CALL NUMBER |
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| Classification number |
RJ47 |
| Item number |
.S284 2020 |
| 049 ## - LOCAL HOLDINGS (OCLC) |
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| Holding library |
MAIN |
| 100 1# - MAIN ENTRY--PERSONAL NAME |
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| Personal name |
Gengler, Amanda M., |
| Relator term |
Author |
| 245 10 - TITLE STATEMENT |
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| Title |
"Save my kid" : |
| Remainder of title |
how families of critically ill children cope, hope, and negotiate an unequal healthcare system |
| Statement of responsibility, etc. |
Amanda M. Gengler. |
| 246 3# - VARYING FORM OF TITLE |
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| Title proper/short title |
Save my kid |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. |
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| Place of publication, distribution, etc. |
New York : |
| Name of publisher, distributor, etc. |
New York University Press, |
| Date of publication, distribution, etc. |
(c)2020. |
| 300 ## - PHYSICAL DESCRIPTION |
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| Extent |
1 online resource (241 pages) |
| 336 ## - CONTENT TYPE |
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| Content type term |
text |
| Content type code |
txt |
| Source |
rdacontent |
| 337 ## - MEDIA TYPE |
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| Media type term |
computer |
| Media type code |
c |
| Source |
rdamedia |
| 338 ## - CARRIER TYPE |
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| Carrier type term |
online resource |
| Carrier type code |
cr |
| Source |
rdacarrier |
| 347 ## - DIGITAL FILE CHARACTERISTICS |
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| File type |
data file |
| Source |
rda |
| 504 ## - BIBLIOGRAPHY, ETC. NOTE |
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| Bibliography, etc. note |
Includes bibliographies and index. |
| 505 00 - FORMATTED CONTENTS NOTE |
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| Formatted contents note |
Cover -- |
| Title |
Title -- |
| -- |
Copyright -- |
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Dedication -- |
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Contents -- |
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Preface -- |
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Part I: Families in Crisis. 1. Hope is a thing with feathers -- |
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2. Studying families of critically ill children --Part II: Unequal illnesses.3. Care-captaining: climbing the rungs of the US healthcare system -- |
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4. Care-entrusting: staying on the medical sidelines -- |
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5. Blending and switching care strategies: finding emotional equilibrium -- |
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Part III: Tangled Up in Hope.6. When everything is not enough -- |
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7. The fragility and tenacity of hope -- |
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8. Emotionally perilous paths: illness management, emotion management, and the production of healthcare inequalities -- |
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Acknowledgments -- |
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Appendix A: Doing fieldwork in emotionally fraught settings: a brief reflection -- |
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Appendix B: Family and physician demographics -- |
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Notes -- |
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References -- |
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Index -- |
| -- |
About the Author. |
| 520 8# - SUMMARY, ETC. |
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| Summary, etc. |
A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. In "Save My Kid," Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in the United States. Gengler reveals the unrecognized, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children's critical illnesses. She also uncovers the role that emotional goals-deeply rooted in the culture of illness and medicine-play in medical decision-making, healthcare interactions, and the end of children's lives. A deeply compassionate read, "Save My Kid" is an inside look at inequality in healthcare among those with the most at stake. |
| 530 ## - COPYRIGHT INFORMATION: |
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| COPYRIGHT INFORMATION |
COPYRIGHT NOT covered - Click this link to request copyright permission: |
| Uniform Resource Identifier |
<a href="b">b</a> |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM |
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| Topical term or geographic name entry element |
Critically ill children |
| General subdivision |
Medical care |
| Geographic subdivision |
United States. |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM |
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| Topical term or geographic name entry element |
Parents of terminally ill children |
| General subdivision |
Psychology. |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM |
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| Topical term or geographic name entry element |
Catastrophic illness |
| General subdivision |
Social aspects |
| Geographic subdivision |
United States. |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM |
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| Topical term or geographic name entry element |
Child health services |
| Geographic subdivision |
United States. |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM |
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| Topical term or geographic name entry element |
Health services accessibility |
| Geographic subdivision |
United States. |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM |
|---|
| Topical term or geographic name entry element |
Health services accessibility. |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM |
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| Topical term or geographic name entry element |
Children. |
| 655 #1 - INDEX TERM--GENRE/FORM |
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| Genre/form data or focus term |
Electronic Books. |
| 856 40 - ELECTRONIC LOCATION AND ACCESS |
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| -- |
Click to access digital title | log in using your CIU ID number and my.ciu.edu password. |
| Uniform Resource Identifier |
<a href="httpss://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&db=nlabk&AN=2090061&site=eds-live&custid=s3260518">httpss://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&db=nlabk&AN=2090061&site=eds-live&custid=s3260518</a> |
| 942 ## - ADDED ENTRY ELEMENTS (KOHA) |
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| Koha item type |
Online Book (LOGIN USING YOUR MY CIU LOGIN AND PASSWORD) |
| DONATED BY: |
|
| VENDOR |
EBSCO |
| Classification part |
RJ. |
| PUBLICATION YEAR |
2020 |
| LOCATION |
ONLINE |
| REQUESTED BY: |
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NFIC |
| Source of classification or shelving scheme |
|
| 994 ## - |
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| -- |
92 |
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NT |
| 902 ## - LOCAL DATA ELEMENT B, LDB (RLIN) |
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| a |
1 |
| b |
Cynthia Snell |
| c |
1 |
| d |
Cynthia Snell |